Activities of the Network

Usher Network Pre-conference seminar in Aalborg 2017

We are very proud to announce the launch of the 2017 Usher Network Pre-conference to be held on the 3rd and 4th September in Aalborg, Denmark. This will provide a fantastic opportunity for people to share ideas, research and network within the sphere of Usher syndrome. For more information about the Pre-conference and how you can be involved, please contact <


For the conference flyer, please: click here 

REGISTRATION forms are now live <>


Pre-conference Programme (to be confirmed very soon),


Deadline date is Tuesday, 26th July 2017.


Usher Network Pre-conference seminar in Belfast 2014

In 2014 the Usher Network Pre-conference was held on the 2nd-3rd November in Belfast, Ireland. It was a really fantastic opportunity for people working with, and from, the Usher community to get together and share best practice. We were very lucky in 2014 to have some very prominent speakers from the field of Usher syndrome and deafblindness giving presentations. There was information on new working practices, genetics and the latest treatments, information from those working with Usher-clients directly and a chance for delegates to ask questions and network with their foreign counterparts. 


Usher Network activity at DbI 2013

The first Network committee meeting was held at the 8th European DbI conference in Lille, France, August 2013.

The network ran a session to discuss and highlight gaps in services for Usher-people internationally and country specific. This exercise enabled us to identify problematic areas for people with Usher syndrome, professionals working with them and their families and careers. It also helped the Network to think about our focus and priorities for the pre-conference seminar planned ahead of the ABDN-conference in November 2014. It was here that an expanded committee was formed.