Welcome to the Usher Syndrome Network

DbI Usher Network Pre-conference seminar in Aalborg 2017

We had a successful Usher Network Pre-conference in Aalborg, Denmark in September 2017.   This provided a fantastic opportunity for people to share ideas, research and network within the sphere of Usher syndrome.

Please see our Activities page for more information.

16th September is Usher Awareness Day around the world, celebrating and increasing an awareness about Usher syndrome. The pre-conference was a superb example of this as we celebrated bringing Usher people from different countries together, to share their personal experiences as well as the professionals working alongside them, demonstrating that we truly are working together as one to make the Network a great success. 

Aims and objectives of the Usher Network

We hope to share knowledge about research and best practice across countries and organisations. The Usher Network will be an ongoing group with discussions around new developments in working with people with Usher syndrome. We will use the group as a platform to share information and provide innovative new working practices. We will achieve this by:

  • collecting, discussing, communicating and disseminating new research and developments in Usher syndrome (medical and psychosocial research, legal developments)
  • supporting members’ requests in various countries
  • ensuring that views and current best practice related to Usher syndrome is disseminated to DbI members and collected in the network
  • communicating new developments in relevant magazines/ journals/newsletters, at conferences etc.
  • representing the interests of people with Usher syndrome at major conferences, events and in general society.

How to become a member of the Usher Network

If you would like to be a member of the Usher Network, please provide your e-mail address to the contact person.