- What is Usher síndrome?
- The biology of vision and Usher syndrome
- The biology of hearing and Usher syndrome
- The biology of balance and Usher syndrome
- Genetics and Usher syndrome
- Diagnosing Usher syndrome, genetic testing and counselling
- Understanding genetics
- Management of Usher syndrome
- Communication and Usher syndrome
- Communication methods
- Communication changes and Usher syndrome
- Communication tips for people with Usher syndrome
- Orientation and mobility
- Getting about when you have Usher syndrome
- Mobility tips for people with Usher syndrome
- Mutual support, social media and Usher syndrome
- Research and possible future treatments for Usher syndrome
- About clinical tests
Côté, L., Dubé, M., St-Onge, M. & Beauregard, L. (2013). Helping persons with Usher syndrome type II adapt to deafblindness: An intervention program centered on managing personal goals. British Journal of Visual Impairment, 31 (2), 139–149.
Damen, G.W.J.A., Krabbe, P.F.M., Kilsby, M. & Mylanus, E.A.M. (2005). The Usher lifestyle survey: Maintaining independence: A multi-centre study. International Journal of Rehabilitation Research, 28(4), 309–320.
Dammeyer, J. (2012). Children with Usher syndrome: Mental and behavioral disorders. Behavioral and Brain Functions, 8 (1), 16. Online: http://www.behavioralandbrainfunctions.com/content/8/1/16
Ellis, L. & Hodges, L. (2013). Life and changes with Usher: The experiences of diagnosis for people with Usher syndrome. University of Birmingham/School of Education. Online: http://www.birmingham.ac.uk/Documents/college-social-sciences/education/projects/final-report-on-life-and-change-with-usher.pdf
Figueiredo, M.Z. de A., Chiari, B.M. & Goulart, B.N.G. de (2013). Communication in deafblind adults with Usher syndrome: Retrospective observational study. CoDAS, 25 (4), 319–324.
Högner, N. (2015). Psychological stress in deafblind people with Usher syndrome type II. Journal of Visual Impairment & Blindness, 109 (3), 185-197.
Miner, I. (1995). Psychosocial implications of Usher syndrome, type I, throughout the life cycle. Journal of Visual Impairment & Blindness, 89 (3), 287–296.
Miner, I. (1997). People with usher syndrome, type II: Issues and adaptations. Journal of Visual Impairment & Blindness, 91 (6), 579–589.
Miner, I (1999). Psychotherapy for people with Usher syndrome. In I.W. Leigh (Ed.), Psychotherapy with deaf clients from diverse groups (pp. 307 – 327). Washington, DC: Gallaudet University Press.
Wahlqvist, M., Möller, C., Möller, K. & Danermark, B. (2013). Physical and psychological health in persons with deafblindness that is due to Usher syndrome Type II. Journal of Visual Impairment & Blindness, 107 (3), 207–220.